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dc.contributor.authorGarcia-Dominguez, Jose M.
dc.contributor.authorMartinez-Gines, Maria L.
dc.contributor.authorCarmona, Olga
dc.contributor.authorCaminero, Ana B.
dc.contributor.authorPrefasi, Daniel
dc.contributor.authorMaurino, Jorge
dc.contributor.authorBallesteross, Javier
dc.contributor.authorAres, Adrian
dc.contributor.authorArnal, Carmen
dc.contributor.authorCarcelen, Maria
dc.contributor.authorCannon, Olga
dc.contributor.authorEguia, Pablo
dc.contributor.authordel Carmen Fernandez, Maria
dc.contributor.authorGinestal, Ricardo
dc.contributor.authorLacruz, Laura
dc.contributor.authorLlaneza González, Miguel Ángel 
dc.contributor.authorLopez de Silanes, Carlos
dc.contributor.authorMartin, Gisela
dc.contributor.authorNavarro, Laura
dc.contributor.authorRomero, Beatriz
dc.contributor.authorSeral, Maria
dc.contributor.authorSolar, Myriam
dc.date.accessioned2021-12-10T09:01:35Z
dc.date.available2021-12-10T09:01:35Z
dc.date.issued2019
dc.identifier.issn1177-889X
dc.identifier.otherhttps://www.ncbi.nlm.nih.gov/pubmed/30666093es
dc.identifier.urihttp://hdl.handle.net/20.500.11940/15820
dc.description.abstractBackground: Understanding caregiver strain may be crucial to determine which interventions are most needed to mitigate the negative impact of caring for people with multiple sclerosis (MS). The Caregiver Strain Index (CSI) is a brief self-assessment tool for measuring the caregivers' perceived level of burden. Limited information is available on the psychometric performance of the CSI in MS. Objective: The objective of this study was to assess the factor structure and construct validity of the CSI in MS. Methods: A multicenter, cross-sectional study in adults with relapsing-remitting and primary-progressive MS (McDonald 2010 criteria) was conducted. A non-parametric item response theory (IRT) procedure, Mokken analysis, was conducted to assess the dimensional structure of the CSI. A parametric IRT model for dichotomous responses, Rasch model, was conducted to assess item characteristics. Discriminative validity was assessed comparing the distribution of its overall score between people with mild and moderate-severe disability according to the Expanded Disability Status Scale. Results: A total of 72 MS caregivers were studied. The prevalence of a high level of strain was 23.6% (n=17). Internal reliability was high (Cronbach's alpha =0.91). According to Mokken analysis, CSI represented a unidimensional construct of caregiver burden although two of the total 13 items (#1 and #13) could not be assigned to any factor by an automatic item selection procedure. Without these items, the scalability moved from a weak (Hi =0.37) to a medium scale (Hi =0.44). However, the item characteristic curve of the Rasch model showed a range of appropriate difficulty and the item and person parameters showed good fit (Andersen likelihood ratio test =18.40, df =11; P-value =0.07; all item values for the infit). The CSI score showed a good discriminative validity between the levels of disability of the care recipient. Conclusion: The CSI questionnaire shows appropriate psychometric characteristics being a useful instrument to assess different aspects of burden in MS caregivers in clinical practice.es
dc.language.isoenges
dc.rightsAtribución-NoComercial 4.0 Internacional*
dc.rights.urihttp://creativecommons.org/licenses/by-nc/4.0/*
dc.titleMeasuring burden in caregivers of people with multiple sclerosis: psychometric properties of the CSI questionnairees
dc.typeArtigoes
dc.authorsophosGarcia-Dominguez, Jose M.
dc.authorsophosMartinez-Gines, Maria L.
dc.authorsophosCarmona, Olga
dc.authorsophosCaminero, Ana B.
dc.authorsophosPrefasi, Daniel
dc.authorsophosMaurino, Jorge
dc.authorsophosBallesteross, Javier
dc.authorsophosAres, Adrian
dc.authorsophosArnal, Carmen
dc.authorsophosCarcelen, Maria
dc.authorsophosCannon, Olga
dc.authorsophosEguia, Pablo
dc.authorsophosdel Carmen Fernandez, Maria
dc.authorsophosGinestal, Ricardo
dc.authorsophosLacruz, Laura
dc.authorsophosLlaneza, Miguel
dc.authorsophosLopez de Silanes, Carlos
dc.authorsophosMartin, Gisela
dc.authorsophosNavarro, Laura
dc.authorsophosRomero, Beatriz
dc.authorsophosSeral, Maria
dc.authorsophosSolar, Myriam
dc.identifier.doi10.2147/PPA.S180863
dc.identifier.pmid30666093
dc.identifier.sophos32139
dc.journal.titlePatient Preference and Adherencees
dc.organizationServizo Galego de Saúde::Estrutura de Xestión Integrada (EOXI)::EOXI de Ferrol – Complexo Hospitalario Universitario de Ferrol::Neuroloxíaes
dc.page.initial101es
dc.page.final106es
dc.relation.publisherversionhttps://www.dovepress.com/front_end/cr_data/cache/pdf/download_1615279885_6047370db9083/ppa-180863-measuring-burden-in-caregivers-of-people-with-multiple-scler-010819.pdfes
dc.rights.accessRightsopenAccesses
dc.subject.keywordCHUFes
dc.typefidesArtículo Originales
dc.typesophosArtículo Originales
dc.volume.number13.es


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