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dc.contributor.authorFrank, Derk
dc.contributor.authorKennon, Simon
dc.contributor.authorBonaros, Nikolaos
dc.contributor.authorRomano, Mauro
dc.contributor.authorLefevre, Thierry
dc.contributor.authorDi Mario, Carlo
dc.contributor.authorStefano, Pierluigi
dc.contributor.authorRibichini, Flavio Luciano
dc.contributor.authorHimbert, Dominique
dc.contributor.authorUrena-Alcazar, Marina
dc.contributor.authorSalgado Fernández, Jorge 
dc.contributor.authorCuenca Castillo, Jose Joaquin 
dc.contributor.authorGarcia, Bruno
dc.contributor.authorKurucova, Jana
dc.contributor.authorThoenes, Martin
dc.contributor.authorLuske, Claudia
dc.contributor.authorBramlage, Peter
dc.contributor.authorStyra, Rima
dc.date.accessioned2022-01-25T12:18:45Z
dc.date.available2022-01-25T12:18:45Z
dc.date.issued2019
dc.identifier.issn2053-3624
dc.identifier.otherhttps://www.ncbi.nlm.nih.gov/pubmed/31218003es
dc.identifier.otherhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC6546188/pdf/openhrt-2019-001008.pdfes
dc.identifier.urihttp://hdl.handle.net/20.500.11940/15941
dc.description.abstractBackground: Patients with severe aortic stenosis (AS) have a reduced life expectancy and quality of life (QoL), owing to advanced age and the presence of multiple comorbidities. Currently, there is no AS-specific QoL measurement tool, which prevents an accurate assessment of how this chronic condition and its treatment affect patients. The Toronto Aortic Stenosis Quality of Life Questionnaire (TASQ) was developed in order to address this deficiency. Methods: The present trial protocol was designed to enable validation of the TASQ, which has been produced in five languages (English, French, German, Italian and Spanish) to increase usability. Patients with severe AS who are undergoing surgical aortic valve replacement (SAVR) or transcatheter aortic valve implantation (TAVI) will be asked to complete the TASQ and, for comparative purposes, the Kansas City Cardiomyopathy Questionnaire and the general health-related QoL Short Form-12 questionnaire. The questionnaires will be completed prior to the intervention, at discharge, as well as at 30 days and 3 months follow-up. A total of 290 patients will be recruited across one Canadian and nine European centres. Overall, the protocol validation aims to include 120 patients undergoing transfemoral TAVI (TF-TAVI), 120 undergoing SAVR and up to 50 being treated medically. The primary objective of the registry is to validate the TASQ in five different languages. The secondary objective is to assess the utility of the TASQ for assessing differences in QoL outcome between patients undergoing TF-TAVI, SAVR or medical management for their AS. Discussion: Validation and roll-out of the TASQ will enable clinicians to capture an accurate assessment of how AS and its management affects the QoL of patients and will help them to determine the most appropriate treatment strategy for individual patients. Trial registration number: NCT03186339.en
dc.language.isoenges
dc.rightsAtribución-NoComercial 4.0 Internacional*
dc.rights.urihttp://creativecommons.org/licenses/by-nc/4.0/*
dc.titleTrial protocol for the validation of the 'Toronto Aortic Stenosis Quality of Life (TASQ) Questionnaire' in patients undergoing surgical aortic valve replacement (SAVR) or transfemoral (TF) transcatheter aortic valve implantation (TAVI): the TASQ registry.en
dc.typeArtigoes
dc.identifier.doiopenhrt-2019-001008
dc.identifier.pmid31218003
dc.identifier.sophos32448
dc.issue.number1es
dc.journal.titleOpen Heartes
dc.organizationServizo Galego de Saúde::Estrutura de Xestión Integrada (EOXI)::EOXI de A Coruña - Complexo Hospitalario Universitario de A Coruña::Cardioloxíaes
dc.organizationServizo Galego de Saúde::Estrutura de Xestión Integrada (EOXI)::EOXI de A Coruña - Complexo Hospitalario Universitario de A Coruña::Cirurxía Cardíacaes
dc.rights.accessRightsopenAccesses
dc.subject.keywordCHUACes
dc.typefidesArtículo Originales
dc.typesophosArtículo Originales
dc.volume.number6es


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