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Prioritization of therapy uncertainties in Dystrophic Epidermolysis Bullosa: Where should research direct to? an example of priority setting partnership in very rare disorders
dc.contributor.author | García Doval, José Ignacio | |
dc.contributor.author | Davila Seijo, Paula | |
dc.contributor.author | Aranegui Arteaga, Beatriz Victoria | |
dc.date.accessioned | 2017-06-07T07:03:37Z | |
dc.date.available | 2017-06-07T07:03:37Z | |
dc.date.issued | 2013 | |
dc.identifier.issn | 1750-1172 | |
dc.identifier.uri | http://hdl.handle.net/20.500.11940/2138 | |
dc.language.iso | eng | |
dc.title | Prioritization of therapy uncertainties in Dystrophic Epidermolysis Bullosa: Where should research direct to? an example of priority setting partnership in very rare disorders | |
dc.type | Artigo | es |
dc.authorsophos | Davila-Seijo, P. | |
dc.authorsophos | Hernandez-Martin, A. | |
dc.authorsophos | Morcillo-Makow, E. | |
dc.authorsophos | Lucas, R. D. | |
dc.authorsophos | Dominguez, E. | |
dc.authorsophos | Romero, N. | |
dc.authorsophos | Monros, E. | |
dc.authorsophos | Feito, M. | |
dc.authorsophos | Carretero, L. | |
dc.authorsophos | Aranegui, B. | |
dc.authorsophos | Garcia-Doval, I. | |
dc.identifier.doi | 10.1186/1750-1172-8-6 | |
dc.identifier.isi | 318171700001 | |
dc.identifier.pmid | 23607806 | |
dc.identifier.sophos | 12642 | |
dc.issue.number | 1 | |
dc.journal.title | Orphanet Journal of Rare Diseases | |
dc.organization | Servizo Galego de Saúde::Estrutura de Xestión Integrada (EOXI)::EOXI de Pontevedra e O Salnés - Complexo Hospitalario Universitario de Pontevedra::Dermatoloxía | |
dc.rights.accessRights | openAccess | |
dc.typesophos | Artículo Original | |
dc.volume.number | 8 |
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